Register and health data

The Swedish Research Council is working to improve access to and facilitate the use of register data and health data for purposes such as research.

Our role in register data and health data for research

The Swedish Research Council has been tasked to improve accessibility to and facilitate the use of register data for research purposes, and to assist researchers with information about registers and the relevant legislation. The Swedish Research Council has also been tasked to set up an advisory function for better utilisation of health data for research and innovation.

Using register and health data

The Swedish Research Council operates the website This has information on how register and health data can be used in research. The website also has a link to RUT, a metadata tool that makes it easier to conduct searches in registers and understanding what the variables in the registers mean.
A new website offering support to those who wish to use register data and health data in both research and innovation is currently being developed. The existing content on the current website will be integrated with this.

To External link.


The Swedish Research Council’s publications and positions on register-based research and health data. The publications are written in Swedish, but there is a English summary attached.

31 January 2023
Forskningsöversikt 2023: Klinisk behandlingsforskning
Vetenskapsrådets forskningsöversikt inom klinisk behandlingsforskning beskriver nuläget för forskningen och gör en prognos för utvecklingen de kommande 5–10 åren...
6 April 2022
Uppdrag om rådgivande funktion för bättre nyttjande av hälsodata
Vetenskapsrådet har fått i uppdrag från regeringen att inrätta en rådgivande funktion för bättre nyttjande av hälsodata för forskning och innovation. Detta PM utgör slutredovisningen av uppdraget...
4 April 2022
Finansiering av uppföljningsstudier av covid-19-vaccinering – redovisning av uppdrag
I regleringsbrevet för 2021 fick Vetenskapsrådet i uppdrag att finansiera uppföljningsstudier av covid-19-vacciner. Efter dialog med såväl hälso- och sjukvården som relevanta myndigheter utlystes bidrag till forskningsmiljöer för uppföljningsstudier av covid-19-vaccin...
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12 April 2022
The Swedish Research Council establishes national support and advice on health data
Increased knowledge, national coordination and regular mappings of unclear areas and obstacles...
6 April 2022
High quality research into post-COVID syndrome and COVID-19 vaccines
High quality and good opportunities to contribute to societal benefits summarise the applications approved within the research initiatives for post-C...
14 January 2022
Jonas Oldgren appointed Secretary General for Clinical Research
The Swedish Research Council is appointing a Secretary General for Clinical Research...
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Pdf / Printout


Register-based research


  1. The potential of research data – how research infrastructures provide new opportunities and benefits for society

    This is a high-level meeting during the Swedish Presidency of the Council of the European Union. Discussions during the conference will focus on the possibility of using open research data to solve social challenges, and what role research infrastruc...

  2. New Swedish projects at ESS

    The Swedish Research Council is funding in-kind deliveries from Swedish universities to ESS. Four new projects have now been awarded funding to contribute technical equipment or personnel to the research facility. Lund University is the main supplier...

  3. Results of needs inventory 2021–2022

    Appendix to the Swedish Research Council’s Guide to Infrastructure 2022 At the Swedish Research Council we have a model of prioritisation of research infrastructure that is based on a two-year cycle. The first step of the cycle is an inventory with ...