Register and health data

The Swedish Research Council is working to improve access to and facilitate the use of register data and health data for purposes such as research.

Our role in register data and health data for research

The Swedish Research Council has been tasked to improve accessibility to and facilitate the use of register data for research purposes, and to assist researchers with information about registers and the relevant legislation. The Swedish Research Council has also been tasked to set up an advisory function for better utilisation of health data for research and innovation.

Using register and health data

The Swedish Research Council operates the website This has information on how register and health data can be used in research. The website also has a link to RUT, a metadata tool that makes it easier to conduct searches in registers and understanding what the variables in the registers mean.
A new website offering support to those who wish to use register data and health data in both research and innovation is currently being developed. The existing content on the current website will be integrated with this.

Information in Swedish about the new website can be found on External link.


The Swedish Research Council’s publications and positions on register-based research and health data. The publications are written in Swedish, but there is a English summary attached.

31 March 2023
Utvärdering av den kliniska forskningens kvalitet vid de regioner som omfattas av ALF-avtalet
2023 års utvärderingsrapport Rapporten redovisar resultatet av andra omgångens utvärdering av den kliniska forskningens kvalitet vid de regioner som omfattas av ALF-avtalet. Vetenskapsrådet har genomfört utvärderingen på uppdrag av regeringen...
31 January 2023
Forskningsöversikt 2023: Klinisk behandlingsforskning
Vetenskapsrådets forskningsöversikt inom klinisk behandlingsforskning beskriver nuläget för forskningen och gör en prognos för utvecklingen de kommande 5–10 åren...
6 April 2022
Uppdrag om rådgivande funktion för bättre nyttjande av hälsodata
Vetenskapsrådet har fått i uppdrag från regeringen att inrätta en rådgivande funktion för bättre nyttjande av hälsodata för forskning och innovation. Detta PM utgör slutredovisningen av uppdraget...
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28 April 2023
Nominate researchers for the Athena Prize 2023
The Athena Prize is awarded for research and innovations that have been created in collaboration between health and medical care, academia and the bu...
31 March 2023
Swedish clinical research is of high quality, a new ALF evaluation shows
The ALF evaluation, which is published today, shows a positive development for the quality of Swedish clinical research...
12 April 2022
The Swedish Research Council establishes national support and advice on health data
Increased knowledge, national coordination and regular mappings of unclear areas and obstacles...
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Register-based research


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