Register and health data

The Swedish Research Council is working to improve access to and facilitate the use of register data and health data for purposes such as research.

Our role in register data and health data for research

The Swedish Research Council has been tasked to improve accessibility to and facilitate the use of register data for research purposes, and to assist researchers with information about registers and the relevant legislation. The Swedish Research Council has also been tasked to set up an advisory function for better utilisation of health data for research and innovation.

Using register and health data

The Swedish Research Council operates the website This has information on how register and health data can be used in research. The website also has a link to RUT, a metadata tool that makes it easier to conduct searches in registers and understanding what the variables in the registers mean.

Work is underway to develop a new website, with support for those who want to utilize registry data and health data for research and innovation. Existing content on the current will be integrated into the new website

Information in Swedish about the new website can be found on External link.


The Swedish Research Council’s publications and positions on register-based research and health data. The publications are written in Swedish, but there is a English summary attached.

21 November 2023
De kliniska forskarnas förutsättningar i Sverige
Denna rapport identifierar utmaningar för kliniska forskare i Sverige. Den bygger på frågor som Vetenskapsrådet ställt till forskare och forskarstudenter om deras förutsättningar att ägna sig åt klinisk forskning...
31 March 2023
Utvärdering av den kliniska forskningens kvalitet vid de regioner som omfattas av ALF-avtalet
2023 års utvärderingsrapport Rapporten redovisar resultatet av andra omgångens utvärdering av den kliniska forskningens kvalitet vid de regioner som omfattas av ALF-avtalet. Vetenskapsrådet har genomfört utvärderingen på uppdrag av regeringen...
31 January 2023
Forskningsöversikt 2023: Klinisk behandlingsforskning
Vetenskapsrådets forskningsöversikt inom klinisk behandlingsforskning beskriver nuläget för forskningen och gör en prognos för utvecklingen de kommande 5–10 åren...
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23 February 2024
Just over 75 per cent of clinical studies registered after one year
As from 2022, all clinical studies funded by the Swedish Research Council shall be registered in a public database...
23 November 2023
What are the conditions for clinical research in Sweden?
Clinical research is necessary for developing and improving healthcare in Sweden...
28 April 2023
Nominate researchers for the Athena Prize 2023
The Athena Prize is awarded for research and innovations that have been created in collaboration between health and medical care, academia and the bu...
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Register-based research


  1. Large-scale computational resources

    Are you doing research in computational science? Then you can apply for access to Swedish and European computational resources at NAISS and EuroHPC. Here you can read more about how to do this.

  2. ArchLab

    ArchLab is a distributed research infrastructure that coordinates a number of laboratories that use natural science methods to tackle archaeological questions. The infrastructure is under construction and is coordinated from Umeå University.

  3. Research infrastructures will be able to get funding for 10 years

    The Government is making a change to the Swedish Research Council’s instructions, which means that we can fund research infrastructure of national interest for a longer period, extending from the current 6 years to 10 years. The purpose is to improve...